At Caravel Autism Health, we want to equip you with the resources you need to learn more and to connect with others.
Listed below are organizations and recommended reading that can help. If you have comments or suggestions about additional content we can offer to help parents like you better understand and live with autism, please let us know. Should you need additional support or information, please contact our Intake Navigator at 844-583-5437.
National Online Resources and Information
- ORGANIZATION FOR AUTISM RESEARCH
ORGANIZATION FOR AUTISM RESEARCH
The Organization for Autism Research (OAR) was created in December 2001–the product of the shared vision and unique life experiences of OAR’s seven founders. Led by these parents and grandparents of children and adults on the autism spectrum, OAR set out to use applied science to answer questions that parents, families, individuals with autism, teachers and caregivers confront daily. No other autism organization has this singular focus.
- AUTISM INTERNET MODULE
AUTISM INTERNET MODULE
The AIM project was begun in 2007 as a way to provide parents and professionals with the up-to-date information they need to help individuals with ASD achieve their highest potential.
Developed by the Ohio Center for Autism and Low Incidence (OCALI) in partnership with the Autism Society of America (ASA), the Nebraska Autism Spectrum Disorders Network, the National Professional Development Center on Autism Spectrum Disorders and Toronto’s Geneva Centre for Autism, this series of online learning modules includes information on assessment and identification of ASDs, recognizing and understanding behaviors and characteristics, transition to adulthood, employment, and numerous evidence-based practices and interventions.
All module content has been written by ASD experts from across the U.S., including the Arizona Department of Education, the Indiana Resource Center for Autism, and the University of Miami Center for Autism and Related Disorders. In addition, OCALI staff members have designed each module to be consistent with research on how adults learn; information is presented at a universal reading level, and interactive activities both reinforce knowledge and teach learners how to make the latest research applicable to real life.
- AUTISM SOCIETY OF AMERICA
The Autism Society, the nations leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
- AUTISM SPEAKS
Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Since then, Autism Speaks has grown into the nation’s largest autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. We are proud of what we’ve been able to accomplish and look forward to continued successes in the years ahead.
- CDC AUTISM LINKS AND RESOURCES
CDC AUTISM LINKS AND RESOURCES
The CDC is one of the major operating components of the Department of Health and Human Services. As the nation’s health protection agency, CDC saves lives and protects people from health threats. CDC works 24/7 to protect America from health, safety and security threats, both foreign and in the U.S. Whether diseases start at home or abroad, are chronic or acute, curable or preventable, human error or deliberate attack, CDC fights disease and supports communities and citizens to do the same.
- AUTISM SOCIETY OF WISCONSIN AND LOCAL CHAPTERS
SOCIETIES BY REGION
Autism Society of Wisconsin
Autsim Society of Southeast Wisconsin
Autism Society of Northeast Wisconsin
Autism Society of South Central Wisconsin
Autism Society of the Fox Valley
Autism Society of the Chippewa Valley
Autism Society of the Lakeshore
Autism Society of Central Wisconsin
- BIRTH TO 3
Birth to 3
Birth to 3 is Wisconsin’s early intervention program for infants and toddlers with developmental delays and disabilities and their families. A federal law, the Individuals with Disabilities Education Act (IDEA), provides a framework for a comprehensive program and coordinates developmental, health and social services within the community. The Department of Health Services oversees the Birth to 3 Program in Wisconsin and has developed rules (DHS 90) that specify the program requirements.
- CP CENTER
Cerebral Palsy, Inc. has been serving Northeast Wisconsin for over 54 years. While providing services to people of all ages, regardless of income or their reason for needing services, we strive to promote community involvement, inclusion and enhance the quality of life of all persons. When cost effective, innovative, quality care is needed, we are here to help. Our skilled staff is here to work with individuals and families by providing support and professional services to those who have been affected by temporary or permanent physical, sensory, and/or speech needs or conditions regardless of what brought on the need for services. Our staff is skilled in dealing with Cerebral Palsy, Muscular Dystrophy, Spina Bifida, Arthritis, Back Pain, Post Stroke, Post Surgical, Chronic Pain, Fibromyalgia, Amputees, Diabetes, Head Injury, Autism, Developmental Delays, Accident Recovery, and Sports Injury, just to name a few of the conditions.
- FRIENDS OF AUTISM
Friends of Autism
Friends of Autism was established in 2000 as the only autism charity in Wisconsin dedicated to raising money to fund autism research, awareness, and education. Friends of Autism is powered by volunteers and relied upon by parents and professionals throughout the state.
- GOOD FRIEND, INC.
Good Friend, Inc.
Good Friend’s mission is to create autism awareness, teach acceptance of differences, and foster empathy among typically-developing peers.
- THE KATIE BECKETT PROGRAM
The Katie Beckett Program
The Katie Beckett Program is a special eligibility process that allows certain children who are residents of Wisconsin with long-term disabilities or complex medical needs, living at home with their families, to obtain a Wisconsin Medicaid card. Children who are not eligible for other Medicaid programs because the income or assets of their parents are too high, may be eligible for Medicaid through the Katie Beckett Program.
- NAVIGATING AUTISM
Navigating Autism, Inc. was created in February of 2009 as a central place where the families of those recently diagnosed with autism spectrum disorders can come for unbiased information in easily-understandable terms about treatment options, school expectations, Wisconsin insurance mandates, funding opportunities for uncovered treatments, and more.
- PARENT TO PARENT
Parent to Parent
At the heart of Parent to Parent Support is the opportunity for parents raising children with special needs to connect with another parent who has already learned the language and found the resources…someone who has “been there”.
- WISCONSIN REGIONAL CENTERS
WISCONSIN REGIONAL CENTERS
Wisconsin has five regional Centers dedicated to supporting families with children and youth with special health care needs and the providers that serve them. Your regional Center will help you get answers, find services and connect you to community resources. Services are free and private.
SOUTHEAST REGION – 800-234-KIDS (5437)
NORTHEAST REGION – 877-568-5205
SOUTHERN REGION – 800-532-3321
WESTERN REGION – 800-400-3678
NORTHERN REGION – 866-640-4106
- UNITED HEALTHCARE CHILDREN’S FOUNDATION
United Healthcare Children’s Foundation
The UnitedHealthcare Children’s Foundation is a non-profit Section 501(c)(3) charity funded by contributions from UnitedHealth Group, UnitedHealthcare and its employees, as well as the generosity of individuals and corporations. Purpose: Children with special healthcare needs are sometimes not insured comprehensively to provide coverage for all of their medical treatments. There are few places for families who have gaps in their commercial health benefit plan coverage to turn to for funding medically necessary services for their children. Children may go without necessary treatment, or, they receive the care and families assume a large amount of debt. The Foundation understands these needs and is willing to help fill this void. Philosophy: The Foundation embraces and supports the concept of facilitating access to health-related services that have the potential to significantly enhance either the clinical condition or the quality of life of the child and that are not fully covered by the available commercial health benefit plan. The Foundation provides financial assistance toward the family’s share of the cost of medical services.
- FRIENDS OF AUTISM
Friends of Autism
The Friends of Autism Grant Program (FOAGP) is designed to support families of children and adults with autism or autism spectrum disorder by providing funding assistance for extraordinary expenses resulting from, or attributable to, autism. Financial needs associated with the safety and well being of children with autism and proven effective treatments for autism spectrum disorder receive special emphasis in the FOAGP. FOAGP grants are intended to supplement, not replace, programs or funding from other sources, including government(s), school(s), and insurance. FOAGP grants are intended to be short term and specifically targeted to a family’s immediate needs resulting from, or attributable to, autism. FOAGP grants range from $1 to $500. Five hundred dollars is the maximum any individual or family can receive in a calendar year.
- ACT TODAY (AUTISM CARE AND TREATMENT TODAY)
This organization does give grants to families, but the details are unclear from their website. It seems to be the case that they fund families with multiple autistic children first; then those with greater financial need.
- AUTISM SOCIETY OF NORTHEAST WI
Autism Society of NorthEast WI
ASNEW has made grant monies available for qualifying members to purchase goods and services pertaining to a child with an autism spectrum disorder. Funds may be used for such things as biomedical tests and interventions, safety items such as fencing or alarm systems, or equipment that will be used in the home setting.